FDA Listening Session on FOP

Read the FDA Report

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Natural History Study Data Shared With The FOP Registry

Data sharing benefits the FOP community

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Million Dollar Bike Ride Fundraising Totals Are In

Team#cureFOP raises over $79,000 for New FOP Research Grants in the 2019 Million Dollar Bike Ride 

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New This Year at the 2019 FOP Family Gathering

Here's a sneak peak at what's new at the 2019 Family Gathering!

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FOP Registry Insights Shared at the RARE Drug Development Symposium

Registry participation is encouraged to help advance FOP research

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For One Rare Boy

Kelly Griego competes to raise FOP awareness and support the Wallace family

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Middle Schoolers Make a Difference for FOP Families

Congrats to Team Sugar Rush for winning Destination Imagination regionals and state. Thank you for raising awareness of FOP!

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Two New Recorded Webinars Available on ifopa.org

Watch and Learn

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IFOPA Resilient Living Update

The IFOPA's Resilient Living Program launches thanks to RARE Patient Impact Grant

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Transition to Adult Health Care Provider Webinar

Join us for the Transition to Adult Health Care Provider Webinar

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