Posted by Merritt Neil · May 08, 2017 2:09 PM
Share your tips.
Read more
Share
Posted by Merritt Neil · May 08, 2017 2:05 PM
Everyone at the IFOPA wishes our wonderful FOP moms a very happy Mother’s Day.
Read more
Share
Posted by Merritt Neil · April 19, 2017 11:27 AM
One Family’s FOP Journey and How They’re Raising Awareness—and Raising Funds
Read more
Share
Posted by Merritt Neil · April 19, 2017 11:16 AM
Specialized School Plan Tips Shared by Rory Otto
Read more
Share
Posted by Merritt Neil · March 28, 2017 12:00 PM
An important announcement from Clementia
The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.
Share
Posted by Merritt Neil · March 15, 2017 12:00 PM
The National Organization for Rare Disorders (NORD) named Dr. Fred Kaplan among its 2017 honorees.
Read more.
Share
Posted by Merritt Neil · March 09, 2017 8:56 PM
Easy ideas for getting involved
Read more
Share
Posted by Merritt Neil · March 09, 2017 8:55 PM
Share your ideas
Read more
Share
Posted by Merritt Neil · March 09, 2017 8:55 PM
Chrissy Flexer Explains the History and Heart of Bingo for a Cure!
Read more
Share
Posted by Merritt Neil · March 09, 2017 8:55 PM
Putting a disabled teen in the driver's seat
Read more
Share
