Posted by Merritt Neil · December 19, 2016 12:49 PM
21st Century Cures Legislation Signed by President Obama
On December 7, the Senate followed the House of Representative's lead and signed the 21st Century Cures bill which is focused on developing treatments and cures for rare diseases; President Obama signed it on December 13.
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Posted by Merritt Neil · December 19, 2016 12:40 PM
Growing our ability to deliver on the IFOPA's mission
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Posted by Merritt Neil · November 16, 2016 11:06 PM
Approval of 3 New Sites!
The participation of individuals living with FOP in clinical studies and trials is key to FOP drug development efforts.
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Posted by Merritt Neil · November 14, 2016 10:59 PM
The weekend of November 4, 2016, found members of the FOP community gathered in St. Louis, Missouri
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Posted by Merritt Neil · November 13, 2016 5:53 PM
The IFOPA is pleased to announce the three recipients of nearly $108,000 in research grants through its Competitive Research Grants (CRG) Program
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Posted by Merritt Neil · November 12, 2016 5:49 PM
This holiday season, it’s easier than ever to give back
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Posted by Merritt Neil · November 11, 2016 5:15 PM
The IFOPA hosted the second Drug Development Forum Oct. 24 to 25 in Boston, Massachusetts
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Posted by Merritt Neil · November 10, 2016 3:55 PM
Talbots patrons got a jump start on their holiday shopping – all to benefit The IFOPA!
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Posted by Merritt Neil · October 23, 2016 4:08 PM
Thank you to team Addgene who ran the Superhero 5K in Cambridge, Massachusetts in honor of AJ!
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Posted by Merritt Neil · October 22, 2016 5:08 PM
Meeting the needs of the global FOP community
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