A new feature on the IFOPA website makes it easy to share your unique FOP story

Please visit Share Your FOP Story and use the form to let us know about your experience. We’re collecting stories to use in eNewsletters and awareness materials, on social media and the website.

Remember, the IFOPA welcomes stories from the entire FOP community. We want to hear stories from all of those impacted by FOP: 

• People with FOP
• Parents
• Spouses
• Grandparents or other family members
• Siblings or friends
• Even clinicians and researchers involved with FOP 

Stories connect us! Thank you for sharing your story!