ACT for FOP Grant Program Now in its 5th Year

Advance Research - Help Fund ACT for FOP Grants

The IFOPA's ACT (Accelerating Cures & Treatments) for FOP grant program is getting ready to provide its 5th year of grant funding and you can be part of advancing research! The ACT for FOP program provides research funds to investigators looking to advance new treatments for FOP. To date, the IFOPA has funded over $700,000 to 12 investigators from around the world. Each grant that is funded brings us that much closer to identifying new treatment possibilities for FOP.

The ACT for FOP grant program is made possible through generous donations and contributions from the FOP community. This year we anticipate we'll need $250,000 to make these grants a reality. If you would like to be part of funding these grants through a personal or corporate donation or by holding a fundraiser, email Cathryn Roys, Fundraising and Special Projects Manager at or call + 1 843-709-3244.

ACT for FOP Grants Makes Research Possible!

Benjamin Levi, MD, University of Michigan
2015 and 2017 ACT for FOP Grant Recipient

This ACT for FOP grant allowed for the important collaboration between our laboratories (Levi and Mishina) that otherwise would not have been possible. Specifically, it enabled the synergy between groups with expertise in FOP and traumatic heterotopic ossification that allowed for validation of the first immune directed therapy (rapamycin) that formed the basis for the clinical trial in Japan. This work has also laid the groundwork for understanding the importance of the transforming growth factor beta one kinase (TAK1) pathway in FOP. We look forward to continuing to scaling up the progress made from this award to future discoveries to improve the lives of people living with FOP.

Thank You to our ACT for FOP Funders

The ACT for FOP Grant Program was launched in 2015 by friends and family of Sona Brinkman. Today, others who are passionate about curing FOP have joined them in funding the ACT for FOP Grant Program with lead gifts from Joshua’s Future of Promises, Canadian FOP Network, FOP Australia, FOP Friends®, FOP Italia, friends and family of Sona Brinkman, and the Phoebe Snow Foundation.