Donate Connect
SEARCH

News

Ability Toolbox Online Guidebook Now Available

Posted by · December 10, 2020 11:04 AM

New Database of Independent Living Resources for the FOP Community

Read more Share

Let It Go, Let It Go, Let that Vehicle Go to the IFOPA!

Posted by · December 08, 2020 12:28 PM
Read more Share

Your Year-End Gift Will be MATCHED!

Posted by · December 08, 2020 12:24 PM
Read more Share

International Clinical Council on FOP Releases Editorial on Clinical Trials for FOP

Posted by · December 04, 2020 10:52 AM
Read more Share

Complete Your FOP Registry Questionnaires on the iOS Mobile App

Posted by · November 30, 2020 12:42 PM
Read more Share

Pause in Dosing for the LUMINA-1 FOP Clinical Trial

Posted by · November 30, 2020 11:46 AM
Read more Share

Virtual FOP Family Gathering A Global Success

Posted by · November 30, 2020 11:30 AM
Read more Share

#GivingTuesday 2020 Supports Travel for Critical Dental Care

Posted by · November 16, 2020 1:49 PM
Read more Share

Regeneron LUMINA-1 Trial Announcement

Posted by · October 31, 2020 11:32 AM
Read more Share

New Ability Toolbox Online Guidebook Launches Soon

Posted by · October 29, 2020 12:42 PM

Database of Adaptive Tools, Equipment, Home Modifications and Tips Will Be a Resource for Independent Living  

Read more Share

Learn More

Is it FOP? Just Diagnosed Registry

Make a Difference

Donate Connect Fundraise
Sign in with Facebook, Twitter or email.
Site by Mosaic • Created with NationBuilder
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter

X