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Shop for Good for Mother's Day April 24 & 25 at KendraScott.com and Raise Funds for the IFOPA

Posted by · April 09, 2021 5:41 PM
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Coronavirus (COVID-19) Guidelines for FOP Families

Posted by · March 19, 2021 12:36 PM

Updated March 18, 2021

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Connections for Progress and Hope

Posted by · March 15, 2021 9:55 AM

Hear why this researcher is proud to be an IFOPA monthly donor

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Nearly $325,000 in FOP Research Grants Awarded

Posted by · March 15, 2021 9:07 AM

Meet the Recipients of Six ACT for FOP and Million Dollar Bike Ride Pilot Grants

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Gaming for a Cure: Jackbox Games Style

Posted by · March 12, 2021 12:53 PM
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New Awareness and Education Programs Launched for Health Care Providers

Posted by · March 11, 2021 9:38 AM

Regeneron and Ipsen support educational opportunities

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2021 Virtual FOP Family Gathering Call for Speakers

Posted by · March 01, 2021 9:28 AM
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The Cost of Rare Diseases in the US is Nearly $1 Trillion

Posted by · February 25, 2021 4:37 PM

EveryLife Foundation for Rare Diseases Releases Results of Its Burden of Illness Study

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Ipsen Launches The World's Rarest Dictionary with a Word from the FOP Community

Posted by · February 25, 2021 2:05 PM
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“It takes a village...”

Posted by · February 12, 2021 3:25 PM

Make a Difference as One of the First 100 Monthly Donors

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