News

A Father and his Company Give to Advance Research

An extraordinary $50,000 gift to benefit FOP research

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An Important Update from Ipsen Regarding the Palovarotene Trial for Children Under 14

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Important Announcement about the MOVE Trial for Children Under 14

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Meet the 2019 ACT for FOP Grant Awardees

IFOPA Announces Record-Breaking ACT (Accelerating Cures and Treatments) for FOP Grant Funding

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Save the Date for A Transatlantic Burns Supper Fundraiser

Special fundraiser comes to the United States for the first time

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FOP Drug Development Forum and Family Gathering Come Together in Orlando

A Special Week of Meetings Further Unites the FOP Community 

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A Birthday Wish Comes True

AJ’s Lemonade Stand Raises Over $6,600

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Exciting News from BioCryst Pharmaceuticals

BioCryst launches Phase 1 trial for FOP

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ZipperQ8 Crosses $1 Million Mark!

Success of Beloved Annual Event is Inspiration for Other FOP Fundraisers

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An Important Announcement from Blueprint Medicines & Ipsen

Ipsen and Blueprint enter exclusive agreement in FOP

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