Why This FOP Mom is a Monthly Donor

As the mom of a daughter with FOP, Shannon Halford understands how important it is for FOP families to connect with each other and to access FOP research. Halford is a monthly donor to help make that possible. She wants to inspire more people to join her on the Focus On Possibilities team this month in honor of Mother’s Day.
“Our amazing daughter Raina, who is a bright ray of sunshine and has FOP, is everything to us,” said Halford.
“Supporting the great work of the IFOPA through a monthly donation is the least we can do to honor her and the hope for a better future the IFOPA offers people with FOP.”
Halford appreciates that monthly giving is a convenient way for her busy family to consistently provide support for the IFOPA’s programs. And she knows they’re helping the FOP community by contributing with all the other monthly donors. Together, the gifts add up to a significant and reliable source of funding each month.
“Discovering how much continuous support, research, hope, community and active progress the IFOPA offers made Raina’s diagnosis easier to bear. The IFOPA continues to positively impact our daily lives and our very realistic hopes for her future,” Halford said.
“Monthly donations are an important way to help ensure this amazing organization continues to serve and improve the lives of the FOP community.”
Monthly donors are among the first to receive announcements about research and clinical trials, community news and success stories from the IFOPA. Halford enjoys each update because they show how the IFOPA makes a meaningful difference for her family and those living with FOP.
“The IFOPA has been a lifeline and a godsend for our family and provides so much more hope and support than we could have ever imagined possible for a rare disease like FOP,” said Halford.
“Raina’s future is bright and beautiful, and the IFOPA is a big part of this. I’m so grateful for all they do and am honored to support this organization with monthly donations.”
The IFOPA is thankful for all of our generous monthly donors who have set up gifts in an amount that works for their budget. We’re hoping to welcome 100 members to the Focus On Possibilities monthly giving team by December 31. If you’d like to be one of them, sign up at ifopa.org/monthly-donors. For more information, contact Fundraising and Special Projects Manager Cathryn Roys at [email protected] or +1 843-709-3244.

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