News

It’s time to get ready for Rare Disease Day 2020!

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FOP Registry Mobile App Frequently Asked Questions (FAQs)

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Important Announcement and Letter from Ipsen Regarding the MOVE Trial and a Pause in Dosing

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Resilient Living Educational Series

Register for the Resilient Living Educational Series  

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FOP Registry Rewards Making a Difference

More is being learned about FOP since FOP Registry participation has increased

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Regeneron Releases Phase 2 Trial Results and Shares Next Steps

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One Family’s Friends Become Friends of the FOP Family

Read about how two high school friends reconnect to help #cureFOP

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Regeneron Pharmaceutical Releases Results of Phase 2 of the LUMINA-1 Trial

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Successful Biobank Collection Event in Florida

FOP Biobank an invaluable resource for FOP researchers

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Get an Inside Look at the 2019 FOP Drug Development Forum

Learn more about FOP Talks given by experts from around the world

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