Nine articles feature FOP
We are thrilled to share the RARE BONE edition of Rare Revolution Magazine. Thank you to Ipsen for serving as the editorial sponsor of this edition.
You'll see that the magazine's RARE Inspiration feature story is Amanda Cali — a woman to whom we all owe so much. Nadine Großmann, an FOP scientist who also lives with FOP, graces the front cover and is included in a feature article. Teen Daniel Williams is a panelist for the Young & Rare feature article. A special ad encourages readers to listen to Oliver Collins' podcast with "Because We Are Strong."
You'll also see a feature story on the IFOPA's Ability Toolbox: Everyday Tool for Independent Living. Dr. Clive Friedman led a special article on Oral Health. The incredible work of the Tin Soldiers Global FOP Patient Search is shared in a special article. You'll find FOP included in the Red Flags of Rare Disease article and see an article on the Rare Bone Disease Alliance, of which the IFOPA is a member.
We are grateful to Nicola Miller, editor-in-chief, for embracing the FOP community and sharing our story in so many ways. Read and share the RARE BONE edition.