An extraordinary $50,000 gift to benefit FOP research
The IFOPA is excited to announce a very special $50,000 gift that will benefit FOP research. This generous donation was made in the fall of 2019 by Tage Hansen and his business partners Stinus Lilleore and Thomas Poulsen along with their company Thyborøn Skibs og Motor A/S, a Denmark-based entity specializing in ship and fishing fleet repair.
Tage and Lisbeth Hansen have a 13-year-old daughter, Alberte, who has FOP. Alberte was diagnosed approximately one year ago after she was injured in a ball game and doctors could not figure out what was causing her problems.
“We visited several hospitals and ended up at a university hospital where they diagnosed her with FOP. We didn't know what this was, but today we now know quite a lot about this illness and I have been in contact with all kinds of people,” said Tage. “We discovered that a lot of research is going on, so we decided that we wanted to help. We donated to IFOPA for research and hope we can help to make a difference!”
The Hansens have also become monthly donors to the IFOPA to support research through the ACT (Accelerating Cures & Treatments) for FOP Grant Program and are hoping to do anything they can to help Alberte and other individuals living with FOP. The IFOPA is extremely grateful for their giving and for the incredible $50,000 gift from Tage and his company.
"This gift will advance research at a critical time," said IFOPA Executive Director Michelle Davis. "The possibility of treatments for FOP is advancing and there is hope on the horizon. The IFOPA thanks Tage and his business partners for investing in important research."
If you or your company is interested in supporting the search for treatments and a cure, please contact Fundraising and Special Projects Manager Cathryn Roys.
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