News

New Friends of the IFOPA Busy Spreading FOP Awareness

"I wanted to know why medical professionals were not aware of such a severe medical condition, despite the fact it is so rare."

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An Intro to Resiliency Webinar

Join us for the Intro to Resiliency Webinar

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FOP Mouse Model Now Available to Researchers

The IFOPA is pleased to announce that it is now taking requests from researchers worldwide for its FOP mouse model.

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The Quality of L.I.F.E. Awards Receive a Transformational Donation

A gift from Dr. Frederick S. Kaplan renames the awards as The Harold & Elaine Kaplan Quality of L.I.F.E. Awards

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Updated FOP Treatment Guidelines Released

The 2019 edition of the FOP Treatment Guidelines is now available

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Goal of 20 New Monthly Donors Achieved

Together, we did it! 

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Meet FOP Connect Mentor Patrick Doerr

"I hope that my life experiences can make someone else’s journey a little easier.”

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Resiliency Grant Awarded

The IFOPA Receives $10,000 Global Genes RARE Patient Impact Grant to Launch Emotional Resiliency Training Program

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The IFOPA Funds Two Grant Programs

The IFOPA funds ACT for FOP and the Million Dollar Bike Ride Pilot Grant Program

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Medical Cannabis Webinar

Join us for the Medical Cannabis Webinar

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