Keep a Safe Social Distance, Go For a Family Bike Ride, Raise Money for New FOP Research Grants

As you may have heard, the IFOPA has been invited to participate in the Penn Medicine Orphan Disease Center Million Dollar Bike Ride again this year. In the last 2 years, between the money raised by Team #cureFOP cyclists and matching funds from the Orphan Disease Center, we've been able to award 4 new FOP research grants totaling more than $155,000.

Due to mandates for social distancing, many events have been canceled or postponed. Fortunately, riding a bike is allowed and is a great way for your family to get outside during these days of isolation. Riding virtually on Team #cureFOP from your hometown has always been an option. With COVID-19, the IFOPA has made the decision to shift the IFOPA's participation in the June 13, 2020 event to a fully virtual ride

We understand and appreciate that everyone has been impacted by the COVID-19 pandemic whether it's physically, mentally or economically. During these trying times, it is so important to the FOP community that research continues and the momentum in finding a cure is not lost. We cannot do this without your continued generous support!

By participating on Team #cureFOP as a virtual rider, you and your family can ride anywhere you feel most comfortable – your driveway, your neighborhood, a community greenway. It's entirely up to you! Regardless of where or how you ride (bicycle, adaptive bike or wheelchair), you are still raising money to fund new FOP research.

If you would like to participate in this fun, virtual event, sign up now. We'll set up a personal fundraising page for you and will help kick off your fundraising by reaching out to everyone who has given previously in honor, inviting them to support your virtual event. 

If you have any questions, or if you know another family who might enjoy a virtual ride event, please contact Cathryn Roys, Community Fundraising Manager, at +1 (843) 709-3244 or [email protected].

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