Posted by Merritt Neil · June 17, 2019 9:30 AM
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Posted by Merritt Neil · June 14, 2019 5:13 PM
The IFOPA's Resilient Living Program launches thanks to RARE Patient Impact Grant
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Posted by Merritt Neil · May 31, 2019 4:58 PM
Blueprint Medicines conducting a one-time research study and looking for volunteers
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Posted by Merritt Neil · May 24, 2019 10:43 AM
Posted on behalf of the Clinical Trials Committee of the International Clinical Council on FOP (ICC)
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Posted by Merritt Neil · May 08, 2019 4:21 PM
Join us for the Transition to Adult Health Care Provider Webinar
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Posted by Merritt Neil · April 30, 2019 11:24 AM
Register today for the 2019 FOP Family Gathering!
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Posted by Merritt Neil · April 29, 2019 11:56 AM
Register Now for the May Webinar - Disney Accessibility and Planning
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Posted by Merritt Neil · April 22, 2019 9:20 AM
“The IFOPA’s FOP Biobank is a wonderful resource and asset for the FOP research community”
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Posted by Merritt Neil · April 18, 2019 7:27 PM
Inspired by the success of the Ice Bucket Challenge a high school club in South Korea is using an interest in rare diseases to raise awareness and funds for FOP research.
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Posted by Merritt Neil · April 18, 2019 2:51 PM
We are very pleased to announce the IFOPA has secured FOP Registry sponsorship!
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