IFOPA News

The IFOPA Pinterest Board Goes Live

Share your tips.

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Happy Mother's Day

Everyone at the IFOPA wishes our wonderful FOP moms a very happy Mother’s Day. 

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Rebecca and Kyle Love their “One Rare Boy”

One Family’s FOP Journey and How They’re Raising Awareness—and Raising Funds

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Prep Now for Next School Year

Specialized School Plan Tips Shared by Rory Otto

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Two Important Ways You Can Be Part of Rare Disease Day on Feb. 28

Easy ideas for getting involved

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Contribute to the new IFOPA Pinterest Boards

Share your ideas

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Erin Got Her Wish ... And Got Her Wheels!

Putting a disabled teen in the driver's seat

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Bingo for a Cure!

Chrissy Flexer Explains the History and Heart of Bingo for a Cure!

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IFOPA Welcomes New Board Members

We appreciate their involvement

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UPenn Receives Generous Grant From the IFOPA

The Center for Research in FOP and Related Disorders shares a message of appreciation for recent grant funding from the IFOPA.

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