IFOPA News

New Web Resources for Patients and Families

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An Invitation from the 2021 FOP Family Gathering Success Council

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Article on Caregiver Support in Fibrodysplasia Ossificans Progressiva Published

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A New Way to Navigate the FOP Journey

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Grandparents Give Support Every Month

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A Chance Meeting Leads to a Great FUNdraiser

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FOP Community Supporters Are Back Raising Much-Needed Funds to Fight FOP

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Memories Live On Month By Month

Mike Williams Gives in Memory of Shay Williams

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Join Us — In Pursuit of a Cure 2021

Register for the Live Event on August 25 or 26

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FOP Prevalence Study Released in Orphanet Journal of Rare Diseases

FOP Prevalence is Higher Than 1 in 2 Million

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