IFOPA News

For One Rare Boy

Kelly Griego competes to raise FOP awareness and support the Wallace family

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Middle Schoolers Make a Difference for FOP Families

Congrats to Team Sugar Rush for winning Destination Imagination regionals and state. Thank you for raising awareness of FOP!

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Two New Recorded Webinars Available on ifopa.org

Watch and Learn

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IFOPA Resilient Living Update

The IFOPA's Resilient Living Program launches thanks to RARE Patient Impact Grant

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Transition to Adult Health Care Provider Webinar

Join us for the Transition to Adult Health Care Provider Webinar

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2019 FOP Family Gathering Registration & Wait List Now Open

Register today for the 2019 FOP Family Gathering!

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Disney Accessibility and Planning Webinar

Register Now for the May Webinar - Disney Accessibility and Planning

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New Biobank Generates Excitement for Research

“The IFOPA’s FOP Biobank is a wonderful resource and asset for the FOP research community”

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High School Club in South Korea Sending Support to the FOP Community

Inspired by the success of the Ice Bucket Challenge a high school club in South Korea is using an interest in rare diseases to raise awareness and funds for FOP research.

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We're Grateful for our FOP Registry Sponsors

We are very pleased to announce the IFOPA has secured FOP Registry sponsorship! 

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