Did you know the baby teeth of children and pre-teens with FOP can help FOP research? There is a short window of opportunity for receiving the teeth, so we've developed specific instructions for their handling and shipping.
You can be ready by contacting the IFOPA's FOP Biobank at [email protected] when you or your child notices a loose tooth. A collection kit, including instructions, will be sent to your home prior to the tooth falling out. You will collect and package the tooth once it naturally falls out. Because the teeth must be processed immediately to harvest the cells that help FOP research, we are only able to accept baby teeth from the United States.
The FOP Biobank is a centralized collection of donated baby teeth, saliva, urine and blood used for FOP research by qualified scientists around the world. The Biobank also collects clinical information from people with FOP to enable research into factors that affect treatment and outcomes. By sharing portions of the samples and the anonymous health information with many different labs around the world, the IFOPA Biobank maximizes the impact from each donation.
Don't forget! When a tooth starts to wiggle, email [email protected] to receive your child's tooth collection kit. All postage is paid so it costs you nothing to help FOP research.
Baby Teeth Can Help FOP Research
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