Videos

The YouTube channel FOPNews is where we publish all IFOPA and FOP videos. Please visit FOPNews to view all videos.

Change My Life: A Thank You Video

FOP Facts and Insights

This 15-part video series offers an abundance of information and advice for people with FOP and their family members, physicians and caregivers. Produced in 2009, the videos include information by Frederick Kaplan, M.D. and Dr. Eileen Shore, Ph.D. of the University of Pennsylvania School of Medicine, as well as IFOPA community member Lori Henrotay, who helped produce the videos for the organization.

  1. Series Overview
  2. What is FOP?
  3. Clinical Features
  4. FOP Misdiagnosis: Issues and Consequences
  5. Treatment Guidelines and Considerations
  6. Pain Management
  7. Special Medical Considerations
  8. FOP Gene Discovery
  9. The FOP Research Lab
  10. Collaborative Research
  11. Pregnancy
  12. Anesthesia
  13. Hearing Impairment
  14. Piercings
  15. Preventative Oral Hygiene

Workshop Videos

These are two videos from workshops presented for FOP individuals and families at the IFOPA 25th Anniversary event in 2013. 

  1. Oral Health Workshop
  2. Anesthesia Workshop

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