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  • Webinar: What You Should Know About ABLE Accounts

    Wednesday, April 25, 2018 at 12:00 PM
    IFOPA Webinar

    IFOPA_Webinars.jpg

    ABLE accounts are tax-advantaged savings accounts that have the potential to significantly increase the independence and quality of life of individuals with disabilities without jeopardizing benefits such as Medicaid and Supplemental Security Income (SSI).

    Please join us for an IFOPA webinar with more information on ABLE accounts on April 25. Patrick Doerr, FOP community member who recently set up an ABLE account, will join us as one of the panelists.

    Register >

  • Clinical Trials Webinar: Clementia MOVE Trial

    Thursday, May 03, 2018 at 12:00 PM
    IFOPA Webinar

    IFOPA_Webinars.jpg

    After many years of successful basic and translational research, we have begun an important and exciting era of clinical trials for FOP. There are currently two FOP clinical trials actively recruiting patients. You're invited to the IFOPA webinar on the Clementia MOVE Trial, led by the principal investigator, Dr. Ed Hsiao at the University of California, San Francisco MOVE Trial site.

    Register >

  • Clinical Trials Webinar: Regeneron LUMINA-1 Trial

    Tuesday, May 15, 2018 at 12:00 PM
    IFOPA Webinar

    IFOPA_Webinars.jpg

    After many years of successful basic and translational research, we have begun an important and exciting era of clinical trials for FOP. There are currently two FOP clinical trials actively recruiting patients. You're invited to the IFOPA webinar on the Regeneron LUMINA-1 Trial, led by the principal investigator, Dr. Bob Pignolo at the Mayo Clinic LUMINA-1 Trial site.

    Register >

  • 2018 FOP Friends, UK Conference & Family Gathering

    Friday, May 18, 2018 at 09:00 AM through May 20, 2018
    2018 FOP Friends, UK Conference & Family Gathering

    FOP Friends invites you to the 2018 FOP Conference and Family Gathering. The event will take place in Manchester, UK at the Radisson Blu Airport Hotel. 

    The conference will take place on Saturday, May 19 with pre-booked clinical appointments available with our world-renowned FOP experts on Friday, May 18; the afternoon of Saturday, May 19; and Sunday May 20.

    FOP experts from around the world will be in attendance to present the latest news on the search for treatments and a cure including an update on current and future clinical trials.

    Learn more and register >

  • Association FOP Poland Meeting

    Tuesday, May 22, 2018 at 09:00 AM through May 24, 2018
    Clinical Medicine Institute at the University of Rzeszów

    Association FOP Poland is organizing a meeting for the FOP community to be held May 22-24 at the Clinical Medicine Institute at the University of Rzeszow in Rzeszów, Poland. May 22-23 will include consultations with Dr. Fred Kaplan followed by a lecture on May 24. 

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