IFOPA News

Double Your Gift on FOP Awareness Day

IFOPA_shirtdesign_ART2color.pngInternational FOP Awareness Day is Monday, April 23, 2018. Generous friends of the IFOPA have agreed to help us raise $60,000 throughout the month of April in honor of FOP Awareness. They will match every dollar we receive—up to $30,000! But we must raise $30,000 to be eligible for the match.

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SAVE THE DATE for the 2018 FOP Family Gathering

FOPFamilyGathering2018_BaltimoreFNL.jpgWe are excited to announce that the 2018 FOP Family Gathering will be held Nov. 16-18 in Baltimore, Maryland. This is the first time an FOP meeting for families has been held in the Northeast since the year 2000. We hope you will join us. 

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Two Upcoming Webinars on Clinical Trials

IFOPA_Webinars.jpgAfter many years of successful basic and translational research, we have begun an important and exciting era of clinical trials for FOP. There are currently two FOP clinical trials actively recruiting patients. You're invited to the IFOPA webinars on each of these trials (please register for each separately). 

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ABLE Accounts Webinar

IFOPA_Webinars.jpgABLE accounts are tax-advantaged savings accounts that have the potential to significantly increase the independence and quality of life of individuals with disabilities without jeopardizing benefits such as Medicaid and Supplemental Security Income (SSI).

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FOP Family’s Philanthropy Ripples Through Community

Making an impact one fundraiser at a time

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Band from Blueprint Medicines Will Compete in Battle of the Biotech Bands for IFOPA

band2.jpgThe band Semi Good Lookin' will represent Blueprint Medicines at the 2018 Battle of the Biotech Bands (BoBB) on the evening of May 9 in Boston, Massachusetts. The event is an amazing opportunity for biotech and pharmaceutical companies throughout Boston, to partner with architecture, design, and building professionals, for the sake of rocking out and raising money for very worthy organizations. 

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The IFOPA Celebrates the Second Year of the FOP Registry

2017 FOP Registry Annual Report

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Making Childhood the Top Priority

Learning to adjust

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New Fundraising Video Available for FOP Fundraisers

Watch, Share, Raise Funds

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Rare Disease Day 2018 - 4.5 Days of Research Funded!

Giving hope to the community

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