News

Rare Disease Day 2018 - 4.5 Days of Research Funded!

Giving hope to the community

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Alex Rodriguez Talks Sharing, Studying…and Serious Baking

“It’s So Helpful to Share Tips for Adaptations and Accommodations…”

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Serving the FOP Community—IFOPA Board Meeting Wrap Up

by Amy Gordon, IFOPA Board Chair

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Team #cureFOP to Ride in the Million Dollar Bike Ride

Don't miss this opportunity to raise funds for a new FOP research grant!

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Big Dreams, Lofty Ambitions

Claudia Cabrera continues to look towards the future

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BioCryst Pharmaceuticals Announcement of Potential Drug Treatment

Exploring treatment for FOP

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The IFOPA Celebrates 10th Anniversary of International President’s Council

Connecting the Global FOP Community for 10 Years

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Your Year-End Gift Can Have Twice The Impact

IFOPA_2017YearEndAppeallogo.jpgThere's still time to double your support of FOP families and research

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Connecting, Learning and Growing at the IFOPA’s 2017 FOP Family Gathering

So much accomplished in this two-day meeting

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Looking Beyond

Andrew Davis, who has mild FOP, attributes positive attitude to family’s support

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