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IPSEN Publishes Burden of Illness Study and Releases Plain Language Summary

Posted by · October 31, 2022 1:12 PM

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FDA Advisory Committee Meeting for Palovarotene Capsules Postponed

Posted by · October 25, 2022 4:23 PM

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Updated Glossary Makes FOP Answers Easier to Find

Posted by · October 19, 2022 11:47 AM

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The WILL Project Continues to Innovate with FOP Community

Posted by · September 30, 2022 6:01 PM

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Ipsen's FOP Natural History Study Published in the Genetics in Medicine Journal

Posted by · September 30, 2022 3:49 PM

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18 FOP and HO Sessions and Posters Featured at the ASBMR 2022 Annual Meeting

Posted by · September 24, 2022 3:29 PM

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Join Us In Pursuit of a Cure — Investing in Every Path to Hope!

Posted by · September 20, 2022 4:20 PM

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Youth with FOP and Siblings Enjoy Two Days of Hands-On Fun at Campference

Posted by · September 16, 2022 11:25 AM

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BioCryst Pharmaceuticals Granted Orphan Drug Designation from U.S. FDA for BCX9250

Posted by · September 01, 2022 9:04 AM

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You’re Invited to Submit Written Testimony to the US FDA

Posted by · August 24, 2022 10:06 AM

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