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Join Us for In Pursuit of a Cure 2023 —Relentless

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Gather With Fellow FOP Families at Camp

The opportunity awaits to take part in a joy-filled, inclusive camp experience at Weekend Family Camp in the summer of 2024.

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European Commission Does Not Grant Marketing Authorization Approval for Palovarotene as a Treatment for FOP

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‘Everyone Must Help Each Other’

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What is an FDA Advisory Committee?

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‘Thank You for Putting a Smile On My Son’s Face’

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35 Years Later, FOP Connection Continues Bringing the Community Together

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The Harold and Elaine Kaplan Quality of L.I.F.E. Awards Program Is Undergoing Changes

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Supporting the FOP Community with Our New Partner, FreeWill

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Ipsen Announces Re-Examination of Palovarotene Confirms Negative Opinion Given in January 2023

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