Meet FOP Connect Mentor Patrick Doerr

"I hope that my life experiences can make someone else’s journey a little easier.”

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Resiliency Grant Awarded

The IFOPA Receives $10,000 Global Genes RARE Patient Impact Grant to Launch Emotional Resiliency Training Program

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The IFOPA Funds Two Grant Programs

The IFOPA funds ACT for FOP and the Million Dollar Bike Ride Pilot Grant Program

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Medical Cannabis Webinar

Join us for the Medical Cannabis Webinar

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Baltimore Family Gathering Wrap-up

Connecting. Learning. Growing.

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At the Forefront of Change

Keeping hope close at heart

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27th Annual Report of the FOP Collaborative Research Project

The 27th Annual Report is Now Available!

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Support the Quality of L.I.F.E. Awards on #GivingTuesday

Make a tangible difference


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Blueprint Medicines Presents Preclinical Data Supporting the Development of an FOP Treatment Drug, BLU-782

Shared at the 2018 American Society of Bone and Mineral Research Meeting

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University of Michigan Hosts First Unifying FOP and Traumatic HO Symposium

Bringing together research and clinical experts in FOP and trauma-induced HO

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