Donate Connect
SEARCH

News

U.S. FDA Approves Palovarotene Capsules as a Treatment for FOP

Posted by · August 16, 2023 4:45 PM
Read more Share

What's New with In Pursuit of a Cure 2023?

Posted by · August 15, 2023 4:27 PM
Read more Share

Join Us for In Pursuit of a Cure 2023 —Relentless

Posted by · August 03, 2023 8:29 AM
Read more Share

Gather With Fellow FOP Families at Camp

Posted by · July 28, 2023 10:11 AM

The opportunity awaits to take part in a joy-filled, inclusive camp experience at Weekend Family Camp in the summer of 2024.

Read more Share

European Commission Does Not Grant Marketing Authorization Approval for Palovarotene as a Treatment for FOP

Posted by · July 20, 2023 9:43 AM
Read more Share

‘Everyone Must Help Each Other’

Posted by · July 17, 2023 3:41 PM
Read more Share

What is an FDA Advisory Committee?

Posted by · June 26, 2023 8:11 AM
Read more Share

‘Thank You for Putting a Smile On My Son’s Face’

Posted by · June 23, 2023 8:42 AM
Read more Share

35 Years Later, FOP Connection Continues Bringing the Community Together

Posted by · June 22, 2023 7:59 AM
Read more Share

The Harold and Elaine Kaplan Quality of L.I.F.E. Awards Program Is Undergoing Changes

Posted by · June 01, 2023 7:02 PM
Read more Share

Learn More

Is it FOP? Just Diagnosed Registry

Make a Difference

Donate Connect Fundraise
Sign in with Facebook, Twitter or email.
Site by Mosaic • Created with NationBuilder
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter