Donate Connect
SEARCH

FOP News

Cardiac Changes in FOP

Posted by · August 06, 2020 12:47 PM

Patients with ACVR1R206H mutations have an increased prevalence of cardiac conduction abnormalities on electrocardiogram in a natural history study of FOP

Read more Share

Update from Keros Therapeutics on KER-047

Posted by · August 04, 2020 9:57 AM

Keros completes Phase 1 Clinical Trial

Read more Share

Coronavirus (COVID-19) Precautions for FOP Families (Updated July 17, 2020)

Posted by · July 17, 2020 6:28 PM
Read more Share

You're Invited to Participate!

Posted by · July 06, 2020 10:10 AM

Study on Effects of COVID-19 on Endocrine Disorders

Read more Share

Ipsen, FOP and the Journal of the Endocrine Society 

Posted by · June 08, 2020 4:11 PM
Read more Share

Tele-mentoring Webinar on FOP Offers CME Credit

Posted by · May 22, 2020 10:48 AM

Invite Your Local Physician

Read more Share

Coronavirus (COVID-19) Precautions for FOP Families (Updated March 27, 2020)

Posted by · March 30, 2020 8:34 AM
Read more Share

Important Press Release and Letter from Ipsen Announcing They Will Reinitiate Dosing in the MOVE Trial

Posted by · March 26, 2020 8:38 AM

Dosing to begin again in patients 14 years of age and older currently enrolled in the trial

Read more Share

STOPFOP Recruitment Paused

Posted by · March 17, 2020 10:55 AM
Read more Share

International Clinical Council on FOP Issues COVID-19 Precautions for FOP Families

Posted by · March 17, 2020 8:55 AM
Read more Share

Learn More

Is it FOP? Just Diagnosed Registry

Make a Difference

Donate Connect Fundraise
Sign in with Facebook, Twitter or email.
Site by Mosaic • Created with NationBuilder
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter