News

Gaming for a Cure: Jackbox Games Style

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New Awareness and Education Programs Launched for Health Care Providers

Regeneron and Ipsen support educational opportunities

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2021 Virtual FOP Family Gathering Call for Speakers

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The Cost of Rare Diseases in the US is Nearly $1 Trillion

EveryLife Foundation for Rare Diseases Releases Results of Its Burden of Illness Study

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Ipsen Launches The World's Rarest Dictionary with a Word from the FOP Community

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“It takes a village...”

Make a Difference as One of the First 100 Monthly Donors

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Get Ready for #RareDiseaseDay 2021

There are several new ways for you to participate virtually this year

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Fundraising During Social Distancing

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Multiple Kinase Inhibitors Being Tested to Treat FOP

Four Kinase Inhibitors Currently in FOP Clinical Trials

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Take a Closer Look at the New Ability Toolbox Online Guidebook!

Database of Adaptive Tools, Equipment, Home Modifications and Tips Is a Valuable Resource for Independent Living  

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