More user-friendly resource helps ‘community navigate the world of FOP’

FOP is a complex condition, and the terms, research and science behind it can be as well. Recently, we updated the FOP Glossary on the IFOPA website to make important information more accessible. 

The friendlier format is more intuitive than before and offers multiple ways to search. Now, users can type in and search a specific term, filter results by content type (“FOP Biology,” “FOP Research” or “Clinical Studies & Trials”) or sort and scan all terms beginning with the same letter.

“It is hard to remember all the terminology. This makes it easy to remind myself of what each term means and the differences between them,” explained Emma Albee, who has FOP. 

The new "related terms" feature adds another way to search and connect concepts. Now, when users select a topic, they will also see a list of related terms and be able to click on each one to learn more. This new function makes it simpler for Emma and other users to gain a more thorough understanding of complicated topics. 

“While we’re all eager for a treatment or cure, the sophisticated science that is necessary to reach that goal can be overwhelming,” said Rebecca Wallace, mom to Eli who has FOP. “The same can be said for classes of medications, medical terminology and clinical trial information. The glossary is a great tool to help members of the community navigate the world of FOP.”
 
If you haven’t already, we encourage you to check out our updated Glossary for yourself. If you follow us on social media, each Wednesday we feature a different glossary term with the hashtag #ScienceMadeSimple. We hope the updated glossary provides the answers you’re looking for more quickly and easily than ever before.