You Make Our Family Services Programs Possible

Help us do more for our FOP family

Each FOP experience is different. That’s why the IFOPA offers a wealth of resources to help every person with FOP, their families, loved ones and caretakers.

As we work toward treatments and a cure, we remain focused on making life better for people living with FOP — and we rely on friends like you to do this. Your ongoing generosity helps educate, inspire and comfort people daily.

  • Irving didn’t know anyone else with FOP until he attended the 2021 Virtual Family Gathering

  • Gerald attended the 2022 Virtual Family Gathering and found other dads who share his FOP journey

  • Cody and Jaxon connected through the new youth program, Campference, and met others living with FOP and their siblings 

  • Through Ability Toolbox, Ciske found practical ways to help her live more independently and doctors treating those with FOP use medical toolkits to use help their FOP patients find creative ways to manage their daily needs 

  • Paulina wanted more resources for herself and others living with FOP in their native language so she participated in Focus on 5 and then started the Ifopers Latino group to make sure other native Spanish speakers could learn and connect

  • Hamish got involved with Family Services then became a presenter for the Advocacy Series

  • Stephanie took advantage of programs for caregivers, found support and learned ways to take care of herself while she cares for her son who lives with FOP

All of these life-changing programs, and others, are only possible with your support. We couldn’t do this without dedicated and determined friends like you.  

Your generosity has a direct impact on the connections that make life better for people with FOP and those who love them. And when you make a year-end gift, that impact will be DOUBLED. Thanks to generous friends of the IFOPA, every gift through December 31 will be matched (up to $55,000).

Together, we can reach people around the world and make their lives better.

If you'd like to make a gift of stocks or securities, visit and scroll down to the section "Electronic Transfer of Stocks & Securities."

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