Uniting to Cure FOP

Since 1988, people with fibrodysplasia ossificans progressiva (FOP) have come together from around the world for support, to develop connections and to advance what is known about FOP through their participation in family and scientific meetings and clinical studies and trials. Their efforts have also funded millions of dollars of research to find treatments and, one day, a cure for this devastating disease.

We hope the facts and stories shared on this page of people living with FOP will educate you about the resilience of our community and inspire you to join us in raising awareness.