Uniting to Cure FOP
Since 1988, people with fibrodysplasia ossificans progressiva (FOP) have come together from around the world for support, to develop connections and to advance what is known about FOP through their participation in family and scientific meetings and clinical studies and trials. Their efforts have also funded millions of dollars of research to find treatments and, one day, a cure for this devastating disease.
We hope the facts and stories shared on this page of people living with FOP will educate you about the resilience of our community and inspire you to join us in raising awareness.
Listen to These FOP Stories
Help Spread Awareness!
1.GET AN FOP T-SHIRT. In order to receive your t-shirt in time for Global FOP Awareness Day, US orders must be placed by March 31. International orders are still welcome but may arrive after April 23.
2. FRAME YOUR FACEBOOK PROFILE PICTURE with an FOP awareness message (available in 11 languages).