Awareness Day

2021 Global
FOP Awareness Day

April 23 – FOP Awareness Day – celebrates the day it was announced that the FOP gene, ACVR1, had been discovered.

15 years 2021 marks the 15th anniversary of the announcement of the gene discovery.

Press release and photos from that special day

This year, FOP organizations from around the world are coming together to celebrate FOP Awareness Day with a unified, global message – Uniting to Cure FOP.

Uniting To Cure FOP. Global FOP Awareness Day
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Argentina
Fundación FOP
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Australia
FOP Australia
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Brasil
FOP Brasil
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Denmark
Svenska FOP-föreningen
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Finland
Svenska FOP-föreningen
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France
FOP France
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Germany
FOP e.V.
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Italy
FOP Italia Onlus
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New Zealand
FOP Australia
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Norway
Svenska FOP-föreningen
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Russia
FOP Russia
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South Africa
South African F.O.P. Association
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Sweden
Svenska FOP-föreningen
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United Kingdom
FOP Friends®
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United States
IFOPA

For a list of all countries served
by FOP organizations, visit ifopa.org/fop_international_organizations

LEARN MORE

about FOP and how to support those living with this ultra-rare, genetic disease.

LEARN MORE

Raise awareness

all month long with FOP facts, videos, t-shirts and more.

RAISE AWARENESS

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