Awareness Day

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2022 Global
FOP Awareness Day

April 23 – FOP Awareness Day – celebrates the day it was announced that the FOP gene, ACVR1, had been discovered.

2022 marks the 16th anniversary of the announcement of the gene discovery.

Press release and photos from that special day

Hope. Believe. Wish. 2022 Global FOP Awareness Day

Our unified vision is a cure for FOP, accessible worldwide, so FOP organizations from around the world are coming together to celebrate FOP Awareness Day.

Argentina
Fundación FOP

Australia
FOP Australia

Brasil
FOP Brasil

Canada
Canadian
FOP Network

Denmark
Svenska
FOP-föreningen

Finland
Svenska
FOP-föreningen

France
FOP France

Germany
FOP e.V.

Italy
FOP Italia Onlus

New Zealand
FOP Australia

Norway
Svenska
FOP-föreningen

Russia
FOP Russia

Serbia
FOP Serbia

South Africa
FOP Africa

Spain
AEFOP

Sweden
Svenska
FOP-föreningen

Netherlands
FOP Stichting
Nederland

United Kingdom
FOP Friends®

United States
IFOPA

For a list of all countries served by FOP organizations, visit ifopa.org/fop_international_organizations

LEARN MORE

about FOP and how to support those living with this ultra-rare, genetic disease.

Raise awareness

all month long with FOP facts, videos, t-shirts and more.

RAISE AWARENESS

Awareness Day

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