Awareness Day

2022 Global
FOP Awareness Day

April 23 – FOP Awareness Day – celebrates the day it was announced that the FOP gene, ACVR1, had been discovered.

2022 marks the 16th anniversary of the announcement of the gene discovery.

Press release and photos from that special day
Hope. Believe. Wish.  2022 Global FOP Awareness Day

Our unified vision is a cure for FOP, accessible worldwide, so FOP organizations from around the world are coming together to celebrate FOP Awareness Day.

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Argentina
Fundación FOP
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Australia
FOP Australia
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Brasil
FOP Brasil
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Canada
Canadian
FOP Network
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Denmark
Svenska
FOP-föreningen
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Finland
Svenska
FOP-föreningen
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France
FOP France
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Germany
FOP e.V.
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Italy
FOP Italia Onlus
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New Zealand
FOP Australia
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Norway
Svenska
FOP-föreningen
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Russia
FOP Russia
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Serbia
FOP Serbia
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South Africa
FOP Africa
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Spain
AEFOP
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Sweden
Svenska
FOP-föreningen
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Netherlands
FOP Stichting
Nederland
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United Kingdom
FOP Friends®
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United States
IFOPA

 

For a list of all countries served by FOP organizations, visit ifopa.org/fop_international_organizations

LEARN MORE

about FOP and how to support those living with this ultra-rare, genetic disease.

LEARN MORE

Raise awareness

all month long with FOP facts, videos, t-shirts and more.

RAISE AWARENESS

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