2021 Global
FOP Awareness Day
April 23 – FOP Awareness Day – celebrates the day it was announced that the FOP gene, ACVR1, had been discovered.
15 years 2021 marks the 15th anniversary of the announcement of the gene discovery.
Press release and photos from that special dayThis year, FOP organizations from around the world are coming together to celebrate FOP Awareness Day with a unified, global message – Uniting to Cure FOP.


Argentina
Fundación FOP
Fundación FOP

Australia
FOP Australia
FOP Australia

Brasil
FOP Brasil
FOP Brasil

Denmark
Svenska FOP-föreningen
Svenska FOP-föreningen

Finland
Svenska FOP-föreningen
Svenska FOP-föreningen

France
FOP France
FOP France

Germany
FOP e.V.
FOP e.V.

Italy
FOP Italia Onlus
FOP Italia Onlus

New Zealand
FOP Australia
FOP Australia

Norway
Svenska FOP-föreningen
Svenska FOP-föreningen

Russia
FOP Russia
FOP Russia

South Africa
South African F.O.P. Association
South African F.O.P. Association

Sweden
Svenska FOP-föreningen
Svenska FOP-föreningen

United Kingdom
FOP Friends®
FOP Friends®

United States
IFOPA
IFOPA
For a list of all countries served
by FOP organizations, visit ifopa.org/fop_international_organizations
LEARN MORE
about FOP and how to support those living with this ultra-rare, genetic disease.
LEARN MORE