Hope. Believe. Wish.
Since 1988, people with fibrodysplasia ossificans progressiva (FOP) have come together from around the world for support, to develop connections and to advance what is known about FOP through their participation in family and scientific meetings and clinical studies and trials. Their efforts have also funded millions of dollars of research to find treatments and, one day, a cure for this devastating disease.
We hope the facts and stories shared on this page of people living with FOP will educate you about the resilience of our community and inspire you to join us in raising awareness. Please join our fight to end misdiagnosis by making a gift today. Gifts in April will be matched so your gift will go twice as far.
Listen to These FOP Stories
Help Spread Awareness!
GET AN FOP T-SHIRT. In order to receive your t-shirt in time for Global FOP Awareness Day, US orders must be placed by April 3. International orders are still welcome but may arrive after April 23.