Start Planning Now for the 2019 FOP Family Gathering

In Fall 2019 the Family Gathering will be held in Orlando, Florida and will begin directly following the FOP Drug Development Forum. The Drug Development Forum is an invitation-only scientific meeting designed to maximize the dialogue and information exchange among FOP clinicians and academic and pharmaceutical researchers, as well as foster an environment of collaboration among the participants. 

The Family Gathering will begin on Thursday, November 14 with a joint reception and dinner with attendees from the Drug Development Forum. We will celebrate this rare opportunity to have researchers, clinicians and FOP families together at the same time. The reception will include scientific poster presentations which will allow families the opportunity to learn from researchers and ask questions. Friday, November 15 and Saturday, November 16 will be full days of Family Gathering presentations and breakouts sessions. Although, there will be no general session meetings on Sunday, November 17 the day will consist of Ask A Doctor/Dentist meetings for those families who have not yet been seen, as well as opportunities to participate in IFOPA programs like the FOP Biobank.

We look forward to seeing many long-time community members and welcoming new families in Orlando this November! If you have questions about the 2019 Family Gathering, please send us an email at

To assist families who are interested in attending the FOP Family Gathering with their planning we are sharing a brief timeline of events for the months leading up to registration.

  • A preliminary agenda, registration fees and the travel stipend application will be posted in March.
  • Travel stipend applicants will be notified by the end of April.
  • Registration for individuals who live in the Southeast or have not previously attended a Family Gathering will open in early May.
  • Registration for individuals who live outside of the Southeast will open in late May.

**The FOP Family Gathering will only be offered in English.

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