Family Gathering Agenda

Thursday, Nov. 14 (9 a.m. to 2 p.m.)- The IFOPA will be hosting an optional pre-conference workshop for caregivers, adults with FOP and spouses aimed at providing an educational overview of the background of our Resilient Living Program as well as the opportunity to practice implementing resilient exercises in your day-to-day life.
Click here to learn more about the Resilient Living Workshop

Thursday, Nov. 14 (4 p.m. to 10 p.m.)– The Family Gathering will begin on Thursday afternoon with a joint reception and dinner with attendees from the Drug Development Forum. We will celebrate this rare opportunity to have researchers, clinicians and FOP families together at the same time. The reception will include scientific poster presentations which will allow families the opportunity to learn from researchers and ask questions.

Friday, Nov. 15
 – We’ll have a full day with presentations in the morning and breakouts in the afternoon. Ask a Doctor and Ask a Dentist meetings will also take place on Friday afternoon.

Saturday, Nov. 16 – Saturday will be the last day of general sessions in the morning followed by afternoon breakouts. Ask a Doctor and Ask a Dentist meetings will also take place on Saturday afternoon.

Sunday, Nov. 17 – 
Sunday will be an additional day of Ask A Doctor and Ask A Dentists meetings with the opportunity to enjoy the additional activities listed below.

**Please note that the times for Ask a Doctor and Ask a Dentist meetings are subject to change and will be finalized before Family Gathering registration opens May 1.

Throughout the weekend, participants will have the chance to participate in a variety of community activities such as participating in the IFOPA Biobank, visiting Resource Connect: Independent Tool for Everyday Living, sharing your FOP Story, shopping at the IFOPA store and having your photo taken by a professional photographer.

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