Family Gathering Agenda

To view the preliminary itinerary click here!                                                                                  Register for the 2019 Family Gathering

Thursday, Nov. 14 (9 am to 2 pm) – The IFOPA will be hosting an optional pre-conference workshop for caregivers, adults with FOP, and spouses aimed at providing an educational overview of our Resilient Living Program as well as the opportunity to practice implementing resilient exercises in your day-to-day life. Click here to learn more about the Resilient Living Workshop

Thursday, Nov. 14 (4 to 10 pm) – The Family Gathering will begin on Thursday afternoon with a joint reception and dinner with attendees from the Drug Development Forum. We will celebrate this rare opportunity to have researchers, clinicians and FOP families together at the same time. The reception will include scientific poster presentations which will allow families the opportunity to learn from researchers and ask questions.

Friday, Nov. 15
 – We’ll have a full day with presentations in the morning and breakouts in the afternoon. Ask a Doctor and Ask a Dentist meetings will also take place on Friday afternoon. There will be a group dinner at the hotel on Friday evening.

Saturday, Nov. 16 – Saturday will be the last day of general sessions in the morning followed by afternoon breakouts. Ask a Doctor and Ask a Dentist meetings will also take place on Saturday afternoon. Saturday evening you are free to explore the resort or venture out in Orlando with old and new friends. 

Sunday, Nov. 17 – 
Sunday will be an additional day of Ask A Doctor and Ask A Dentists meetings with the opportunity to enjoy the additional activities listed below.

Throughout the weekend, participants will have the chance to participate in a variety of community activities such as participating in the IFOPA Biobank, visiting Resource Connect: Independent Tool for Everyday Living, sharing your FOP Story, shopping at the IFOPA store and having your photo taken by a professional photographer.

Disney Accessibility and Planning Webinar 

Interested in visiting Disney before the Family Gathering, during the Saturday evening of the Family Gathering or after the Family Gathering concludes on Sunday? Watch the IFOPA recorded webinar hosted by community member, and Disney enthusiast, Steve Eichner. Steve shares background information about Disney World including information about getting around Disney and Universal, ride accessibility, special events at the theme parks and making dining reservations. 

Access Steve's presentation with links to resources here! Have questions for Steve? You can reach him at [email protected]

Check out the Special Meeting Theme Park Ticket Prices available to families for purchase at:

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