Thursday, Nov. 14 (9 am to 2 pm) – The IFOPA will be hosting an optional pre-conference workshop for caregivers, adults with FOP, and spouses aimed at providing an educational overview of our Resilient Living Program as well as the opportunity to practice implementing resilient exercises in your day-to-day life. Click here to learn more about the Resilient Living Workshop
Thursday, Nov. 14 (4 to 10 pm) – The Family Gathering will begin on Thursday afternoon with a joint reception and dinner with attendees from the Drug Development Forum. We will celebrate this rare opportunity to have researchers, clinicians and FOP families together at the same time. The reception will include scientific poster presentations which will allow families the opportunity to learn from researchers and ask questions.
Throughout the weekend, participants will have the chance to participate in a variety of community activities such as participating in the IFOPA Biobank, visiting Resource Connect: Independent Tool for Everyday Living, sharing your FOP Story, shopping at the IFOPA store and having your photo taken by a professional photographer.
Disney Accessibility and Planning Webinar
Interested in visiting Disney before the Family Gathering, during the Saturday evening of the Family Gathering or after the Family Gathering concludes on Sunday? Watch the IFOPA recorded webinar hosted by community member, and Disney enthusiast, Steve Eichner. Steve shares background information about Disney World including information about getting around Disney and Universal, ride accessibility, special events at the theme parks and making dining reservations.
Do you like this page?