Thanks To You - 2022 Global FOP Awareness Day a Huge Success

Thank you to everyone around the world who joined in the fun for our second Global FOP Awareness Day. Fifteen national FOP organizations representing 19 countries came together to spread FOP awareness and to Hope. Believe. Wish. for a world without FOP.

The 2022 Global FOP Awareness Day Campaign was very well received and was a huge success," shared Nadine Großmann from FOP e.V., the national organization in Germany. "People really loved the theme. It was awesome to see different social media channels flooded with FOP facts."

Social media posts featured facts about FOP and videos of six FOP families from around the world. You can still watch the videos at On the IFOPA's social media platforms (Facebook, Instagram, Twitter and LinkedIn), Awareness Day posts were seen over 104,000 times and shared nearly 850 times – raising awareness far beyond the FOP community.

With your help, we met the generous match challenge and secured an additional $50,000 in donations. In total, the 2022 FOP Awareness Day Challenge raised more than $125,000 from nearly 300 donors – $25,000 over our original goal.

This year, nearly 500 t-shirts were purchased which will continue to raise FOP awareness all over the world all year long. We’re grateful for our incredible community’s consistent, generous commitment.

Efforts to end misdiagnosis and isolation, educate and support families and find treatments and a cure will continue, thanks to you! Join us again next year for 2023 Global FOP Awareness Day.

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