ProgramNameOpts-01.jpgYou dream of a world free of FOP. Your fundraising will help the IFOPA fund critical research and support services to help us achieve just that.

Through Team #cureFOP, raising funds and awareness for The IFOPA is fun and easy. Simply turn your existing hobbies and passions – anything from running to baking to fashion to golfing - into a fundraising opportunity. We’ll be here every step of the way to help you as you mobilize your friends, family and coworkers to bring your ideas to life.

What will you do to help fundraise for the IFOPA?

Team #cureFOP allows anyone to create a webpage for their personal fundraising campaign or event. You can share information about you, the person with FOP who inspires you to fundraise and post photos or videos. Get started today with the Team #curefop Planning Guide, visit the Team #cureFOP webpage, raise awareness with free #cureFOP promotional materials or email us at [email protected].

NEW: Host a restaurant or shopping night for FOP!

A variety of restaurants and retailers across the country host charity nights. Typically, a percentage of sales from an evening will be donated to selected charities. These are fun opportunities to get your friends and family members together for a night out to benefit FOP! Learn more and see a list of participating restaurants and retailers by clicking here.

Recent Fundraising News

Classmates Show Kindness with IFOPA Movie Night Fundraiser

The Casebolt Family Hosts a Pasta Party for Rare Disease Day

Liz Wolensky Bikes for FOP Awareness and Her Best Friend

The Wallace Family's "One Rare Boy"

Bingo for a Cure! Joshua's Future of Promises

Talbots Fundraiser for IFOPA

Team Addgene Runs Superhero 5K

Lincoln's Legacy Run

Letter Writing Campaign in Honor of Natalie 


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