Research Centers

Research Centers

Since the identification of the gene responsible for FOP in 2006, many research centers around the world have developed not only an interest in FOP, but research programs to better understand this debilitating disease. Like all of us, their ultimate goal is the development of treatments and, one day, a cure for FOP. We will be profiling these labs from around the world to share their important work with the FOP community.

Stay tuned for a brand new directory of academic research centers throughout the United States and around the world. If you represent an academic research center and want to do research in FOP, or if you'd like to be listed in our directory, please contact us

Learn more about research centers for FOP and related disorders around the world. 

United States

Burn/Wound and Regenerative Medicine Laboratory, University of Michigan

The Center for Research in FOP & Related Disorders at the University of Pennsylvania

Translational Research Program in Pediatric Orthopaedics, The Children's Hospital of Philadelphia (CHOP)




Further Information

Agrawal, Shailesh, MD

Harvard University/Brigham & Womens

Renata Bocciadri, PhD

IRCCS Istituto Giannina Gaslini

Brunelli, Silvia, Ph.D

University of Milano

Bullok, Alex, MD


de Vries Teun J, MD

Academic Centre for Dentistry Amsterdam (ACTA)

Schoemaker, Ton, Bsc

Academic Centre for Dentistry Amsterdam (ACTA)

Economide, Ari,s PhD


Eekhoff, Marelise, MD


Goldhammer, David, MD


Groppe, Jay, PhD

Texas A&M

Hong, Chaz, MD

University of Maryland 

Hsiao, Ed, MD


Ikegawa, Shiro, MD, PhD


Kaplan, Fred, MD & Shore, Eileen, MD


Katagiri, Takenobu, PhD

Saitama Medical University

Levi, Ben, MD

University of Michigan

Pacifici, Maurizio, Ph.D

Children’s Hospital of Philadelphia

Perrien, Daniel, MD


Pignolo, Robert, MD, PhD


Shim, Jae, PhD


Toguchida, Junya, PhD


Ventura, Francesc, PhD

University of Barcelona 

Yelick, Pamela, PhD


Yokota, Toshifumi, MD


Yu, Paul, MD

Harvard University/Brigham & Womens

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