Research Centers

Research Centers

Since the identification of the gene responsible for FOP in 2006, many research centers around the world have developed not only an interest in FOP, but research programs to better understand this debilitating disease. Like all of us, their ultimate goal is the development of treatments and, one day, a cure for FOP. We will be profiling these labs from around the world to share their important work with the FOP community.

Stay tuned for a brand-new directory of academic research centers throughout the United States and around the world. If you represent an academic research center and want to do research in FOP, or if you'd like to be listed in our directory, please contact us

Learn more about research centers for FOP and related disorders around the world.

Academic Research Centers
Agrawal, Shailesh, MD
Harvard University/Brigham & Women's Hospital
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Renata Bocciadri, PhD
IRCCS Istituto Giannina Gaslini
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Brunelli, Silvia, Ph.D
University of Milano
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Bullok, Alex, MD
Oxford
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de Vries, Teun J, MD
Academic Centre for Dentistry Amsterdam (ACTA)
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Schoemaker, Ton, Bsc
Academic Centre for Dentistry Amsterdam (ACTA)
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Economides, Aris PhD
Regeneron
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Eekhoff, Marelise, MD
VuMC
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Goldhamer, David, MD
UCONN
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Groppe, Jay, PhD
Texas A&M
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Hong, Chaz, MD
University of Maryland
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Hsiao, Ed, MD
UCSF
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Ikegawa, Shiro, MD, PhD
RIKEN
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Kaplan, Fred, MD & Shore, Eileen, MD
UPenn
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Katagiri, Takenobu, PhD
Saitama Medical University
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Levi, Ben, MD
University of Michigan
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Pacifici, Maurizio, Ph.D
Children's Hospital of Philadelphia
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Perrien, Daniel, MD
Emory
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Pignolo, Robert, MD, PhD
Mayo
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Shim, Jae, PhD
UMASS
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Toguchida, Junya, PhD
Kyoto
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Ventura, Francesc, PhD
University of Barcelona
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Yelick, Pamela, PhD
Tufts
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Yokota, Toshifumi, MD
Alberta
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Yu, Paul, MD
Harvard University/Brigham & Women's Hospital
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*List may not be comprehensive.

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