Research Centers

Research Centers

Since the identification of the gene responsible for FOP in 2006, many research centers around the world have developed not only an interest in FOP, but research programs to better understand this debilitating disease. Like all of us, their ultimate goal is the development of treatments and, one day, a cure for FOP. We will be profiling these labs from around the world to share their important work with the FOP community.

Stay tuned for a brand-new directory of academic research centers throughout the United States and around the world. If you represent an academic research center and want to do research in FOP, or if you'd like to be listed in our directory, please contact us

Learn more about research centers for FOP and related disorders around the world.

Academic Research Centers
Agrawal, Shailesh, MD
Harvard University/Brigham & Women's Hospital
More Information
Renata Bocciadri, PhD
IRCCS Istituto Giannina Gaslini
More Information
Brunelli, Silvia, Ph.D
University of Milano
More Information
Bullok, Alex, MD
Oxford
More Information
de Vries, Teun J, MD
Academic Centre for Dentistry Amsterdam (ACTA)
More Information
Schoemaker, Ton, Bsc
Academic Centre for Dentistry Amsterdam (ACTA)
More Information
Economides, Aris PhD
Regeneron
More Information
Eekhoff, Marelise, MD
VuMC
More Information
Goldhamer, David, MD
UCONN
More Information
Groppe, Jay, PhD
Texas A&M
More Information
Hong, Chaz, MD
University of Maryland
More Information
Hsiao, Ed, MD
UCSF
More Information
Ikegawa, Shiro, MD, PhD
RIKEN
More Information
Kaplan, Fred, MD & Shore, Eileen, MD
UPenn
More Information
Katagiri, Takenobu, PhD
Saitama Medical University
More Information
Levi, Ben, MD
University of Michigan
More Information
Pacifici, Maurizio, Ph.D
Children's Hospital of Philadelphia
More Information
Perrien, Daniel, MD
Emory
More Information
Pignolo, Robert, MD, PhD
Mayo
More Information
Shim, Jae, PhD
UMASS
More Information
Toguchida, Junya, PhD
Kyoto
More Information
Ventura, Francesc, PhD
University of Barcelona
More Information
Yelick, Pamela, PhD
Tufts
More Information
Yokota, Toshifumi, MD
Alberta
More Information
Yu, Paul, MD
Harvard University/Brigham & Women's Hospital
More Information

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter