“It takes a village...”
Make a Difference as One of the First 100 Monthly Donors
Read moreGet Ready for #RareDiseaseDay 2021
There are several new ways for you to participate virtually this year
Read moreGlobal Genes RARE Patient Advocacy Summit
This is not an IFOPA-sponsored event. Each year Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners and allies. More information at https://globalgenes.org/event/patient-summit/.
EveryLife Foundation Rare Disease Week
This is not an IFOPA-sponsored event. More information will be available later this year at https://everylifefoundation.org/events-schedule/
Rare on the Road Leadership Tour In-Person Training and Networking
Chicago, IL
This is not an IFOPA-sponsored event. This event is part of the Global Genes and EveryLife Foundation Rare on the Road Leadership Tour. Rare on the Road events are held around the country and are designed to develop the next generation of advocacy leaders. More information at https://raretour.org/
Rare on the Road Leadership Tour In-Person Training and Networking
Miami, FL
This is not an IFOPA-sponsored event. This event is part of the Global Genes and EveryLife Foundation Rare on the Road Leadership Tour. Rare on the Road events are held around the country and are designed to develop the next generation of advocacy leaders. More information at https://raretour.org/
A Rare Disease Leadership Interactive Webinar
This is not an IFOPA-sponsored event. This event is part of the Global Genes and EveryLife Foundation Rare on the Road Leadership Tour. Rare on the Road events are held around the country and are designed to develop the next generation of advocacy leaders. More information at https://raretour.org/
National Organization of Rare Disorders (NORD) Patient and Family Forum Living Rare, Living Stronger Interactive Virtual Forum
This is not an IFOPA-sponsored event. More information at https://rarediseases.org/living-rare-forum
