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Important Announcement and Letter from Ipsen Regarding the MOVE Trial and a Pause in Dosing

Posted on FOP News by · January 24, 2020 9:47 AM
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FOP Registry Rewards Making a Difference

Posted on IFOPA News by · January 15, 2020 11:19 AM

More is being learned about FOP since FOP Registry participation has increased

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Regeneron Releases Phase 2 Trial Results and Shares Next Steps

Posted on FOP News by · January 15, 2020 10:57 AM
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One Family’s Friends Become Friends of the FOP Family

Posted on IFOPA News by · January 10, 2020 5:46 PM

Read about how two high school friends reconnect to help #cureFOP

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Regeneron Pharmaceutical Releases Results of Phase 2 of the LUMINA-1 Trial

Posted on FOP News by · January 09, 2020 9:09 AM
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Successful Biobank Collection Event in Florida

Posted on IFOPA News by · December 20, 2019 4:54 PM

FOP Biobank an invaluable resource for FOP researchers

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Get an Inside Look at the 2019 FOP Drug Development Forum

Posted on IFOPA News by · December 17, 2019 10:51 AM

Learn more about FOP Talks given by experts from around the world

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Meet the 2019 ACT for FOP Grant Awardees

Posted on IFOPA News by · December 05, 2019 11:48 AM

IFOPA Announces Record-Breaking ACT (Accelerating Cures and Treatments) for FOP Grant Funding

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Save the Date for A Transatlantic Burns Supper Fundraiser

Posted on IFOPA News by · November 24, 2019 10:58 PM

Special fundraiser comes to the United States for the first time

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FOP Drug Development Forum and Family Gathering Come Together in Orlando

Posted on IFOPA News by · November 22, 2019 1:06 PM

A Special Week of Meetings Further Unites the FOP Community 

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