Virtual Family Gathering Itinerary

Preliminary Itinerary   

                                     

 

Friday, November 20

9:00 to 10:00 am EST The Leaky Faucet by Dr. Fred Kaplan
10:00 am to 11:30 am EST Common Health Questions for FOP Medical Experts Panel (US Treaters)
11:30 am to 12:00 pm EST              Comfort Break 
12:00 to 1:30 pm EST FOP Clinical Trials, Part 1
1:30 to 2:00 pm EST Comfort Break 
2:00 to 3:00 pm EST FOP Clinical Trials, Part 2
3:00 to 3:30 pm EST Comfort Break
3:30 to 5:00 pm EST Small Group Discussions These sessions are CLOSED TO BIOTECH, PHARMA and OTHER CORPORATE ENTITIES.
5:00 to 7:00 pm EST Exhibit Hall and Lounge Time
7 pm EST Community Social Events (to learn more click here)
   
 

Saturday, November 21

4 to 5:30 am EST Small Group Discussions for International Participants based on Country These sessions are CLOSED TO BIOTECH, PHARMA and OTHER CORPORATE ENTITIES.
6 to 8 am EST Exhibit Hall and Lounge Time for International Participants
8 to 9:30 am EST Common Health Questions for FOP Medical Experts Panel (International Treaters)
9:30 to 11 am EST International Community Social Events (to learn more click here)
   
Choose 1:  
11 am to 12:30 pm EST Pain Management Panel 
11 am to 12:30 pm EST Dental Care and Anesthesia Experts Panel
11 am to 12:00 pm EST IFOPA Research Update
Choose 1:  
12:30 to 2 pm EST Living Well with FOP and the Ability Toolbox Program
12:30 to 2 pm EST Complementary Therapies Panel
12:30 to 1:30 pm EST Staying Positive & Coping with Loss
   
2 to 2:30 pm EST Comfort Break and Kids Contest 
2:30 to 4:00 pm EST Small Group Discussions
4:00 to 7:00 pm EST Exhibit Hall and Lounge Time
7 pm EST Community Social Events (to learn more click here)
   
 

Sunday, November 22

8 to 10 am EST Exhibit Hall and Lounge Time for International Participants
10 to 11 am EST Patient and Family Involvement in Clinical Research
11 to 11:45 am EST IFOPA Family Services
11:45 am to 12:15 pm EST Comfort Break and Kids Contest 
12:15 to 1 pm EST Participating in the FOP Registry
1 to 1:45 pm EST Friendraising and Fundraising to Help #cureFOP
1:45 to 2 pm EST Live Wrap-up of the 2020 Family Gathering

Questions about the Family Gathering?

If you have questions about the 2020 Virtual Family Gathering, please contact Hope Newport, Family Services Manager, at hope.newport@ifopa.org or +1 (785) 294-1607.

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter