2023 FOP Family Gathering Information for Local Health Care Providers

The IFOPA recognizes the critical role our families local health care providers play in helping them navigate the challenges of living with FOP. We are pleased to be able to offer the annual FOP Family Gathering hybrid this year and invite local health care providers who may not have had the opportunity to travel to attend this event in the past. Below please find a preview of the preliminary agenda and the link to register for this event free of charge.

How to Register

To participate in the 2023 FOP Family Gathering, please register for free here using the discount code HC2023 at checkout.

Translation Available

The event will offer live translation in Spanish and AI translation in 29 languages. Click here to see a full list

Preliminary Agenda

**Please note this is a preliminary agenda and session titles and times are subject to change.

 

Thursday, November 16
7:00 pm CST	Welcome to the 2023 FOP Family Gathering Session
Friday, November 17
9:15 to 10:45 am CST	Insights from FOP Medical Experts and Questions from the Community
11:15 am to 12:30 pm CST	Clinical Trials for the FOP Community
2:00 to 3:30 CST	Community activities (separate session for virtual attendees only): Meet the Researchers: An interactive lab tour with Q&A from researchers at UT Southwestern Creative Expression Project: Show your artistic side as you decorate a paper leaf electronically to be added to our FOP community tree of strength! Help us all remember how powerful we are when we come together!
Saturday, November 18
8:30 to 9:00 am CST	Welcome Back and Recap of Day 1
9:00 to 10:00 am CST	Safety and FOP
10:30 am to 11:45 pm CST	Symptom Management Strategies for FOP
1:00 to 3:00 pm CST	Laughing Lovebugs Yoga Session: Enjoy the benefits of deep-breathing and endorphins as you laugh your way through this session. Nutrition and FOP: FOP mom, Marie H. Fahlberg be sharing her professional expertise in the field of nutrition and lifestyle-related health combined with her 25 years of experience as a mother of a son with FOP
3:00 to 4:00 pm CST	Closing Session: FOP Community Perspectives