May 09, 2023 at 12:00pm - 1pm Eastern Time (US & Canada)
The IFOPA offers a peer support group for English-speaking adults with FOP.
The group is an opportunity for members of the community to meet monthly for a one-hour session which will be moderated by counseling psychologist Al Freedman, dad of a son who lived for 26 years with another rare disease.
The group will provide opportunities for connection between community members by creating a safe space for socializing and sharing challenges related to life with FOP. The group moderator will offer suggestions and techniques to help navigate challenges that are brought up in group discussions.