Patients & Families

Explore resources for living with FOP

Whether you or someone you love has been diagnosed with fibrodysplasia ossificans progressiva (FOP), we are here to provide support, education and resources to help you understand the disease better and improve your quality of life. Explore the pages below to learn more about living with FOP and get inspired by stories of courage and strength.

Make a Difference

Donate Connect Fundraise
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter