Karen’s daughter Miranda was diagnosed with FOP at age 2 in 2007. Since then, Karen has viewed involvement with the IFOPA as “absolutely vital” for her and her family. She is now in her second term as a board member and secretary of the board, and was also involved in the formation of an FOP organization in Canada, the Canadian FOP Network.  

Karen writes a weekly blog about her family’s experience with FOP, as well as other topics of interest to the FOP community. 

She graduated with her law degree in 1996, and has worked as a lawyer in plaintiff-side personal injury since being called to the bar.  

“My vision for the IFOPA board is for us to continue to appreciate the fundamental importance of scientific research into FOP treatment options,” she says. “Secondly, I believe it’s important that we continue to understand, appreciate and facilitate support between all FOP individuals and families worldwide.”