Join Us In Pursuit of a Cure — Investing in Every Path to Hope!

This signature IFOPA event enters its third year with some very exciting news! Our FOP community — and YOU — have advanced gene therapy research and helped uncover critical information necessary to find treatments and a cure for FOP.

The 2022 In Pursuit of a Cure — Investing in Every Path to Hope Campaign continues this groundbreaking work and will also fund clinical trial support.

This is the first time the IFOPA will fund a clinical trial for FOP. STOPFOP — a trial testing saracatinib that’s being held in The Netherlands, Germany and the United Kingdom — may have the potential to stop FOP bone growth and prevent or lessen flares.

We need you to help us keep pushing for more FOP research.

Our goal is to raise $525,000 to keep these hopeful projects moving forward. Research is expensive. We need your help to keep gene therapy and the STOPFOP trial moving forward. Together, we can make life better for our friends and loved ones living with FOP!


Get the Facts. Spread the Word. Take Action.

  • Register to Attend the EventJoin us on September 29 or 30 for an exciting virtual event where you’ll hear about all the latest research updates and what’s next!
  • Give Today and DOUBLE Your Impact. Generous friends of the IFOPA are matching every gift we receive toward the campaign up to $55,000! Give early to make your contribution go further.
  • Set Up Your Own Fundraising Page. Invite your friends and family to help cure FOP with you. Creating your page is easy and it’s a great way to spread the word.

There’s So Much Hope in Our FOP Family        

Megan Olsen and her son Hayden Pheif

Our community has the heart and dedication to take this campaign all the way! We hope you’ll join us as In Pursuit of a Cure accelerates FOP research and brings us together on September 29 or 30.

You can also help spread the word with this flyer to invite your friends and by updating your profile pic on social media.

“I'm happy to join our 2022 Chairs, Felicia & Taylor Wray, in inviting you to In Pursuit of a Cure—Investing in Every Path to Hope,” said IFOPA Board Chair Megan Olsen.

“We know our FOP family is always there for each other. When we all step forward to be part of such important moments like this, I really believe there’s nothing we can’t achieve.”

Please learn more about In Pursuit of a Cure 2022. Thank you for Investing in Every Path to Hope.






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