New Awareness and Education Programs Launched for Health Care Providers

Regeneron and Ipsen support educational opportunities

We recently celebrated Rare Disease Day which reminds us that there are more than 6,000 rare diseases worldwide. Health care providers simply cannot be familiar with every rare disease, but Ipsen Pharma SAS and Regeneron Pharmaceuticals are working to increase awareness of FOP and educate health care providers about FOP diagnosis and care.

In February, three new education programs launched. While Medscape, Peer Voice and Springer Healthcare are promoting these programs through their networks of health care providers and on social media, you are encouraged to share these programs with your local health care providers as well.

Test Your Knowledge: Fibrodysplasia Ossificans Progressiva

Medscape Education Orthopaedics is offering "Test Your Knowledge: Fibrodysplasia Ossificans Progressiva," a continuing medical education (CME) program supported by an educational grant from Regeneron Pharmaceuticals and developed through a strategic partnership between the IFOPA, the Endocrine Society and Medscape. Dr. Bob Pignolo, Mayo Clinic, served as Faculty. 

The goals of continuing medical education and professional development are to acquire and retain knowledge that will enhance clinical practice and improve patient outcomes. The FOP self-assessment survey is offered for CME credit and is designed to test current knowledge and skills related to recognizing and managing FOP.

Access "Test Your Knowledge: Fibrodysplasia Ossificans Progressiva"

FOP Recognition, Treatment and Hope

Springer Healthcare IME is currently offering an FOP Clinical Diagnosis Quiz. Additional education opportunities will be released in the next several months, including two videos – one on diagnosis and one on treatment – plus a webinar. This activity is supported by an educational grant from Ipsen.

Springer Healthcare IME – in collaboration with a global network of scientific experts – designs, develops and delivers meaningful education that inspires healthcare professionals to maximize their learning and make measurable change in their own clinical practice. 

Access the FOP Clinical Diagnosis Quiz

Let Their Feet Lead the Way: Tools for Early Identification of FOP

PeerVoice is offering "Let Their Feet Lead the Way: Tools for Early Identification of FOP." The activity comprises two presentations featuring Drs. Richard Keen, The Royal National Orthopaedic Hospital, and Angela Cheung, Toronto General Hospital Research Institute; and Mr. Chris Bedford-Gay, FOP Friends Founder & Trustee and IFOPA Board Member. The presentation includes supporting materials which may be downloaded at any time during the presentation.

PeerVoice provides independent medical education helping physicians acquire new clinical skills, test their knowledge and improve their practice of medicine. This educational series on FOP is supported by an educational grant from Ipsen.

Access "Let Their Feet Lead the Way: Tools for Early Identification of FOP"

We are grateful to Regeneron and Ipsen for their commitment to raising awareness of FOP and providing much-needed education for health care providers.




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