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Research is the key.
Together, let's find a cure for FOP.


The In Pursuit of a Cure Campaign culminated in a live international event to unite the entire FOP community on the path to treatments and a cure.

Candace & Jason Hixson

AUGUST 25 / 26, 2021

On August 25 & 26, the IFOPA hosted In Pursuit of a Cure 2021, a virtual event raising funds for phase 2 of the gene therapy research at the University of Massachusetts and new ACT for FOP drug development grants. Attendees from around the world joined us at five different viewing times to meet FOP scientists and hear from FOP families and Youth Ambassadors.

Watch the live broadcast of In Pursuit of a Cure 2021

See a special THANK YOU message from our Youth Ambassadors

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