The In Pursuit of a Cure Campaign will culminate in a live international event that unites the entire FOP community on the path to treatments and a cure.
A virtual event, In Pursuit of a Cure – An Evening of Inspiration & Possibility, was held in August 2020 on Facebook and YouTube. The event was broadcast five times to include families from the US and Canada, Latin America, Europe and Russia, Australia and New Zealand, Asia, the Middle East and Africa.
The event was both educational and touching. Viewers heard about the success of the ACT for FOP Drug Development Grant Program which started in 2015, learned what gene therapy is and how it may benefit the FOP community. Viewers also met FOP families, including some very special Youth Ambassadors.
A generous donor offered a special $50,000 gift to match the first $50,000 in donations to In Pursuit of a Cure. The event not only raised much-needed funds for FOP research, nearly $490,000 in total, but it spread the word about FOP. The two-day virtual event had a reach of more than 16,000 and received more than 3,000 reactions on Facebook & YouTube.