Dr. Patricia Delai of Brasil and Dr. Chris Scott of South Africa are pleased to present the first FOP meeting for those living in Brasil and Africa. It will be an opportunity to hear research and clinical trial updates from FOP experts from around the world. You will also learn about tools and resources for living with FOP, as well as strategies for managing your health. Finally, there will be an opportunity to have a consultation with an FOP expert physician or dentist.

This meeting is designed for FOP families living in Brasil and Africa and a portion of their costs will be provided. If you are interested in attending and live outside of these areas, you will be responsible for all costs of traveling to and participating in the event.

Contact event planner Consuelo Ruiz at cruiz@consueloruiz.com.br to inquire about registration. Registration can only be considered through July 31, 2018. Registration is limited and may close early.  

Don't miss this family-friendly event for everyone! Every year, ZipperQ features an annual BBQ Cook Off, Cornhole Tournament and more.

Learn more, register or donate > 

The FOP Family Gathering is a great opportunity for families to learn from FOP experts, participate in clinics and connect with other FOP families. We hope you are making plans to join us on Nov. 16-18, 2018 in Baltimore, Maryland. This year's Gathering will be the first time since the year 2000 that a Gathering will be held in the Northeast. 

Registration is now open! Learn more and register.

Family Gathering Agenda

Friday, Nov. 16 - You'll have the opportunity to participate in FOP Medical and Dental Clinics, tell your FOP story, and more! We'll have a Welcome Dinner Friday evening.
Saturday, Nov. 17 - We'll spend the day hearing from FOP experts and have breakfast, lunch and dinner together.
Sunday, Nov. 18 -  While the morning will consist of a few more presentations, the majority of the day you'll spend sharing with and learning from one another in breakout groups. We'll have breakfast and lunch together. FOP Medical and Dental Clinics will also be available throughout the day. 

Questions?

Send an email to familygathering@ifopa.org or contact Hope Newport, Family Services Manager, at (816) 854-0920.