7th Annual FOP Italia Family Meeting

April 5-6, 2025
Portonovo, Italy

April 5 - Family Meeting opens at 9:00 CEST and ends with a social dinner at 20:00 CEST

April 6 - Families begin meeting with FOP experts at 9:30 CEST and Business Meeting of FOP Italia at 10:30 CEST

View the agenda

For information and registration, contact [email protected]

2025 FOP Family Gathering Information Session

March 30, 1-1:45 pm ET

Learn about important resources to help with your planning for the 2025 FOP Family Gathering in Minneapolis, November 13-15.

We know the financial costs of participation can make it a challenge for families to attend. We are thrilled to have Katy Horst, a social worker with Angel Flight Central, joining us to share ways their organization can help families with air transportation.

In addition to hearing from Katy, we look forward to having members of the Family Gathering planning committee join as we share a preliminary agenda and highlight special activities for families.

Learn more and register for the March 30 Info Session. 

The 2nd Annual Ethan's Walk, a 5K in honor of Ethan Krisman, will be held on April 27 at 10 am ET at Route 18 Park in Centreville, Maryland.

For more information, contact Kimberly Schultes at [email protected]

Canadian FOP Network Family Conference

Dates: June 12–13, 2025
Format: In-Person and Virtual

Join us for the Canadian FOP Network Family Conference, welcoming individuals living with FOP in Canada and beyond! This event is your chance to connect with Canada-based FOP experts, meet other FOP families, gain valuable insights, and participate in medical and dental clinics tailored to FOP care.

For More Information and To Register: Stay tuned for updates or reach out to Karen Munro at [email protected]

Don’t miss this opportunity to come together, learn, and grow with the Canadian FOP community!

22-24 August, 2025
Melbourne, Australia

We are excited to announce the FOP Australia Patient Conference. The conference will be held in person, with some sessions offered virtually. It will feature clinicians from Australia, along with Dr. Ed Hsiao (USA) who will be attending in person, as well as Drs. Fred Kaplan and Bob Pignolo (USA) who will be attending virtually. The program is currently under development. More details coming soon.

To register, email [email protected]

For more information, contact Brooke Scott at [email protected]

The FOP Family Gathering provides opportunities to meet others in the community and to have your questions answered by leading experts in the field.

The whole family is invited, and onsite childcare and children’s activities will be provided.

This year's agenda will include sessions where people living with FOP and their families can gain insightful knowledge and practical tools to advocate for themselves, manage their health, and live their best lives.

Registration opens May 1.

For more information, click here. 

Hear from 2024 Family Gathering attendees. 

After 2025, Family Gathering will move to an every-other-year event.