The FOP Bereaved Families Group is an opportunity for those who have lost a friend or loved one to FOP to come together virtually to support each other.

Join us on Zoom, Thursday, December 12, at 8 pm ET. Sign up and submit any comments or suggestions in advance by emailing [email protected]

Due to the conversational nature of the meeting, participants must be able to speak and understand English.

Whether you're a parent or a partner, caring for a loved one with FOP is a unique experience that few can relate to. You deserve a community that understands your life and encourages you through the highs and lows.

Join our monthly Caregiver Support Group and connect with fellow caregivers to get questions answered, share your experiences, and support each other as you support your loved ones.

Each session is moderated by counseling psychologist Dr. Al Freedman, whose son lived for 26 years with a rare disease.

Learn More and Register Here

Due to the conversational nature of this meeting, participants must be able to speak and understand English.

Canadian FOP Network Family Conference

Dates: June 12–13, 2025
Format: In-Person and Virtual

Join us for the Canadian FOP Network Family Conference, welcoming individuals living with FOP in Canada and beyond! This event is your chance to connect with Canada-based FOP experts, meet other FOP families, gain valuable insights, and participate in medical and dental clinics tailored to FOP care.

For More Information and To Register: Stay tuned for updates or reach out to Karen Munro at [email protected]

Don’t miss this opportunity to come together, learn, and grow with the Canadian FOP community!