At the Forefront of Change

Reflections as we celebrate the IFOPA's 30th birthday

Sharon on her wedding day to Henry
Aug. 15, 1981

Sharon Fitts of North Carolina counts herself fortunate to have been a part of the IFOPA since its creation, 30 years ago.

“I feel very lucky to have been at the forefront of this organization. And extremely grateful to Jeannie Peeper and Nancy Sando, they are both amazing women,” she said.

Sharon has not traveled physically to many locations, but sees no limits thanks to technological advances that allow her to connect with people digitally. Sharon envisions the IFOPA evolving even further along these lines, and reaching every person around the world who has FOP.

Getting to know many friends who are also dealing with FOP is one of her favorite parts of the IFOPA. One of her first friends with FOP was Nancy Sando, who encouraged her to join the organization.

The mission of funding research to find a cure for FOP is critical for Sharon. She never gives up on the possibility of treatment and implores others to be resilient. “We are ALL here for each other. NEVER give up hope,” she shares.

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